I have begun my blog to raise awareness to the chronic disease Endometriosis. I would like my blog to be a source of information on all aspects of this disease - whether that be surgery, treatment or the day-to-day aspects of living with this condition. I have created a Video Blog to work along side this to discuss a whole variety of issues.

Monday 14 January 2013

A little note...

I am currently going to town on my exercise regime!! And I had stated to lose some weight... Seems a little bit stagnant at the moment, but I am hopeful that things will kick back in soon!!

I am to visit my new surgeon this week.. To discuss my bowel surgeries and how and when this is all going to happen... Not quite sure what to expect and I am a little sad about leaving my old consultant behind. He had been very good to me and I have been with him for about 4 years now and definitely the best one I have had. Fingers crossed that my new specialist will be just as good. The relationship between consult and patient is so very important. I want it to work out well.

I will update you all on what happens on Wednesday.

X

Saturday 5 January 2013

Exercise... A doctors recommendation

Doctors always say that you need to exercise when you have Endo... That it will really help you... Now this is something that of course depends on how you feel. If I am rolling around on the floor in agony or totally bed bound, the entire notion of exercise is insane!! Some doctors don't look at the state that you are in when they tell you this. When you are struggling to walk - there is no way that I am going to exercise!!
However, when I am mobile and the hug cocktail of pain medication works I go to the gym. I push my so much to do the best that I can and to work through the pain. I love the feeling I have after!! Totally buzzing on endorphins! The worlds best high ever.
The only issue is, that I know my pain levels will shoot through the roof later. I love to exercise, but Endo really doesn't like it at all. But I must persevere and push through as best as I can. I will make the most of being able to exercise when I can. As the next flare in invariably cripple me for a few days as it always does!! Fingers crossed it won't happen just yet.
Xx xx

Wednesday 2 January 2013

Weight issues:

Right... Well I went to see the doctor this week as I am concerned about the effects that all these meds have been having on my body. In relation to my weight. For the last 2 years I have been on many many hormone therapies. Pretty much back to back, with a six month break following my op in June, after being on the lovely zolly.

In the last two years I have out on 20kg!! An amount that I am shocked about. And it is depressing the hell out of me!! I was last weighed 2 years ago wen I had "recovered" from my anorexia, so they had my weight on file. I had finally got j to the healthy bracket... And now I am way into the overweight category!! If I had been sat there gorging myself for two years I would have understood, but in all honesty I have one of the healthiest diets of everyone I know, I still train and swim and still the weight continues to go up and up. The respite from exercise I had was when I was in physio, teaching myself to walk properly again after some major never damage in surgery, but even during then I still had physio exercises to do three times a day. I have hardly been sedentary. I walk everywhere too.

All in all the docs said that this is happening because of my meds, and there is little that can be done. Except increase my exercise.. Considering I am going to the gym 4 times a week for 2 hours a time... I now have to go more!!

Now not being defeatist... But with Endo my being able to go 4 times a week is a bloody miracle and my body cries out for the rest days as it is... How on earth will I manage 6!!! Lord only knows.

Today however I weighed myself and I have lost 4kg, which I am amazed and surprised about (I haven't started the 6 times a week yet) I am wondering what has caused this dramatic loss... I am hoping that this is the start of things. It's killing me being the size I am, and I want to lose these 20kg if it kills me!!

No one really explains to you the real impact all these meds have on your body, it's not fully detailed out to you at all... If it was, would we want to take anything at all... To be honest, I probably wouldn't take anything!!

Xx