I have begun my blog to raise awareness to the chronic disease Endometriosis. I would like my blog to be a source of information on all aspects of this disease - whether that be surgery, treatment or the day-to-day aspects of living with this condition. I have created a Video Blog to work along side this to discuss a whole variety of issues.

Sunday 29 April 2012

A new motivation...

Well, this weekend I have attended the information event held my the Endometriosis UK charity. And what a weekend it has been. Very tiring. But I have enjoyed every moment of it.

I loved being able to meet so many women going through the similar situations - but different at the same time. All women supporting one another. And the strength of all of them is astounding.

There were different sections on endo, discussing the condition itself. Pain management, surgery and the different treatment options available too. Even being 10 years diagnosed I still found out so much. It really was a someway overwhelming weekend.

I have never been surrounded by so many women suffering with Endo. It was something that held me in awe for a few hours.

I have found a renewed strength and focus on my mission to raise awareness and fundraise and to he both guide as support the ladies out there suffering with this condition.

It was a very humbling weekend. One I would recommend to anyone!!

Xx

Thursday 26 April 2012

Anxiety:

This week has really been so very full on... that I was hardly surprised that I suffered an anxiety attack. I have not had one for about 6 months... and it was a very bad one indeed. My entire body tensed, I was shaking, I was sick, hot and cold sweats, heart palpatations... the whole show. Followed by not being able to sleep for a very long time after - despite feeling exhausted.

I used to suffer with them an awful lot, and previously have been on Propranolol for them. However, because my Amitriptyline is now such a high dosage and the Propranolol doasge is also high... I cannot take them together... So, I pretty much had to ride out the storm. With cold flannels, ice water and anti semetics... All in all not too bad. I should have listened to the warning sign migraine on Monday - but me being me.. Powers on through as ever.

I awoke this morning feeling really sore and stiff and my muscles were aching terribly, so my resolve today was to remain at home and rest as my body is crying out of it. I havent been particulary over active, i thought. But each day is coming with a task that is somewhat taxing on my body.. hospital appointments, doctors, dentist etc etc... All of thee activities build up.. Until my body just says NO MORE!! And that is what happens yesterday. The rest of my weeks is pretty full on... So today is about me!!

Thursday 19 April 2012

My Fundraising Page:

Well I have completed my Fundraising page for my mission to Raise money for Endometriosis UK.

It can be found here: http://www.justgiving.com/Andrea-Hearn

Please sponsor me for my first activity which is running the Big Fun Run 5k on 8th September 2012

xx

A little time for me...

Living with Endo... It can actually be very difficult to take time out for yourself... Each day seems to be a routine of medication, physio and countless other tasks... Well this week I have thrown caution to the week and am investing some time in me!! :-) and I can say it is most certainly needed and feels great!!

I have taken a little trip away and am enjoying being somewhat indulgent with my food and with my own pleasures.

I have been enjoying the spa... Am going to have a massage and been eating stunning food!

As ever the pain is there non-stop... But it makes it easier to bare when you take this time out for yourself. I would really really recommend it!!

Sunday 15 April 2012

Set backs are tough...

Isn't it amazing how used you can get to feeling somewhere to normal... only to be shot right back down again once back into your prime!

I have had two really good weeks. Actually felt like a regular woman again... I was being social, able to see friends and family... managed to venture outside on a little trip once or twice.. but as always once I get used to how things are being - on a nice level - a flare hits and brings you right back down to earth with a bump!!

Maybe it is because during these "good" days I try to do so much with my time - that I bring on the flare - or end up exhausting myself I do not know... but either way - it sucks! big time!

I awoke this morning in agony. The feeling in my toes kept on going - as my trapped nerves were definitely trapped beyond recognition today! I have also been bleeding on and off for 2 weeks now. And today it was accompanied by abdo pain too.

Bleeding whilst on Zoladex is never really a good thing at all... I am wondering now if the treatment is working at all. If it does not work - I do not know what that will mean for my next surgery... I am due to see my gynae at the end of the month - only another 2 weeks to go and I will be there and will be ready to ask all of these questions again. Especially why I am bleeding...

Anxieties are at a somewhat high at present...

Back to the hot water bottle. Hot baths and my cosy bed!

Love to you all
xxxx